Gene Therapy Death Spurs DMD Community Fears
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A second teenage boy has died from liver failure after receiving Sarepta Therapeutics' gene therapy, Elevidys, for Duchenne muscular dystrophy. This has caused anger, fear, and division within the DMD community. Kameron Lawson, whose 10-year-old son Konner is experiencing similar liver issues after receiving Elevidys, expressed shock and concern after learning of the second death. Konner has been hospitalized multiple times due to liver problems since his treatment in April, and his prognosis remains uncertain.
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